![]() ![]() ![]() Soooo…I’ve been making a list of stupid things people have said to me. There are only a few things I really hate: mornings, not being able to sleep and people thinking they know more about the chronic illnesses I suffer with even though they have no idea what the condition is in the first place. Good luck and keep an eye on your spoon count. Just take your time and consider how much you can actually do with out suffering for in the next day. So here are some tips for my fellow spoonies!Ĥ) Every day is a success, even if all you did was breathĥ) Don’t bring yourself down – just because someone else has done something impressive, doesn’t mean you haven’t done something amazing! I realize that not many people understand why I might not be able to go out or why it takes me until lunchtime to pull myself together and get out of bed! (My partner is one of these people.) It’s so easy to lose spoons with out realising before spending the evening wondering why you’re so exhausted that you want to climb in to bed at 6:30. This is probably the most useless piece of advice I’ve ever received!Īs a spoonie, I need to conserve spoons. On multiple occasions I have been told that I just need to push through the pain and get on with life. fibromyalgia stuck and is severely unhelpful! Sorry this was kind of a rant but I needed to get some stuff off of my chest! I don’t think I need to say anything else on the subject matter! I start uni in September and that scares the hell out of me! I’m autistic and cannot deal with change. Oh and I forgot to mention that writing causes my fingers to dislocate! (Still no one cares!) Reason 3 – I’m going to uni soon! My school doesn’t care, as long as I’m quite. But no, in an exam I have to sit in one place for hours with a pain condition that is made 3000 times worse by stress. I can be fine one minute, then all of a sudden I feel as if my limbs are being electrocuted or slowly burnt! And it is impossible to think, move or even stay sat up during an attack. I know that the NHS says that fibromyalgia is a constant pain, but what they don’t seem to notice is that the pain flairs up for no bloody reason. And you know what doesn’t help mid exam! A Fibromyalgia attack. Although I have an Unconditional offer from Bournemouth university, the stress of having to sit in an exam is still huge. Reason 2 – exam season!Ĭurrently in the UK it is exam season, and for me that means 11, 2-3 hour exams. Unfortunately as most people know many of my problems are aggravated by stress which brings us perfectly on to reason 2. I am currently having all sorts of test done from bloods to biopsies and I have simply needed to get my head around things (and by that I mean pulling myself together and to stop crying into my pillow). Reason 1 – poor healthĪlthough my health is usually pretty bad anyway, over the past couple of months it seems to have declined very rapidly. This is for a few reasons which I will try and explain within this blog post. As you may have noticed, I haven’t posted in a while. ![]()
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